Living with ALS: Finding Peace and Wisdom Within a Fragile Existence
A powerful, inspiring memoir of love, heartbreak, resilience, family, and remarkable triumph in the face of ALS. This unsparing portrait argues that a person's true strength does not reside solely in one's body but also in the ability to face unfathomable adversity and still be able to love and treasure life.
Until there are life saving treatments or a cure for ALS, there is Team Gleason. Since 2011, Team Gleason has provided over $40 million in adventure, technology, equipment, and care services to people living with Amyotrophic Lateral Sclerosis (ALS) and countless others through advocacy, support and ultimately bringing an end to the disease. And, they're just getting started.
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Visit TeamGleason.org to learn more.
Answer
ALS
Started as a call to action from Steve Gleason, Answer ALS is the single largest and most comprehensive ALS research project in history, producing more ALS data than has ever been amassed, while openly sharing with the global research community. That data is being used to investigate the unique pathways of each variation of ALS and begin to develop the right treatments or cure.
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Visit AnswerALS.org to learn more.
Drawing provided an escape for the pain. It enabled me to sit in one place for hours and feel contentment and peace for the first time in a long time. And it was exciting that I liked what I was drawing. It felt so good to feel proud of something again. The momentary relief of the crazy mind was exhilarating.
My drawings started changing into things I didn't understand. Like a different language. I feel like what I couldn't express verbally was coming out of me in these little forms.
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Read more about Michel and her artwork at MichelRaeVarisco.com
Speaking
“I have learned some invaluable life lessons along this journey, ones that I am often asked to share. Through my foundations, social media platforms, and speaking engagements, I regularly hear from people about how my story has inspired them to live more passionate, purposeful lives.”
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Steve occasionally considers speaking engagements. If you are interested in pursuing having Steve speak or appear, please email: Info@SteveGleason.com